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Jonathan's mom and grandma have started the "OI Parents" email list for parents of infants and children with OI
to communicate with each other. There are currently almost 400 subscribers from all over the world. We ask questions and share
information with each other on a daily basis.
This is a wonderful support to any parent of a child with OI. The most
helpful information we found in our care for Jonathan has come from other families, most of whom we have met over the internet.
If you are interested in being a part of this discussion list please let us know at:
oiparents@gmail.com
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