Jonathan's mom and grandma have started the "OI Parents" email list for parents of infants and children
with OI to communicate with each other. There are currently (February 2010) over 650 subscribers from all over the
world. We ask questions and share information with each other on a daily basis.
This is a wonderful support to any
parent of a child with OI. Some of the most helpful information we found, and still find in our care for Jonathan, comes
from other families who are also raising an OI child.
If you are interested in being a part of this discussion list
please let us know at: